Dr Suzanne Nevin

Dr Suzanne Nevin

Research Associate
Medicine & Health
School of Clinical Medicine

I am a Research Associate and Provisional Psychologist (Clinical) in the School of Clinical Medicine at University of New South Wales. My work focuses on implementation science, integrated care, and health system strengthening within complex paediatric and mental health settings.

I partner with children and families to translate evidence into practice through co-design, mixed-methods evaluation, and the application of contemporary implementation frameworks, with the aim of improving patient-centred care for those affected by rare, neurodevelopmental, and complex conditions.

I hold a Bachelor of Psychology (Honours) and a PhD from UNSW, where I co-developed evidence-based positive psychology resources to enhance psychosocial outcomes for families living with severe neurodevelopmental conditions. I am currently completing a Master of Clinical Psychology and am nearing registration as a Clinical Psychologist, positioning me to further integrate clinical practice and implementation science to drive system-level impact.

  • Journal articles | 2026
    Nevin SM; Kelada L; Elvidge KL; Maack M; Hilton G; Kershaw J; Da Ros E; Briggs NE; Farrar MA; Wakefield CE, 2026, 'Navigating the complex landscape of childhood dementia: caregiver psychological well-being, grief, and health system challenges', Journal of Pediatric Psychology, 51, pp. 60 - 72, http://dx.doi.org/10.1093/jpepsy/jsaf095
    Journal articles | 2026
    Nevin SM; Le Marne FA; Kelada L; Wakefield CE; Beavis E; Macintosh R; Palmer EE; McLoughlin R; van Beek A; Wittekind C; Shalhoub C; Lau CYY; Elliot C; Rogers D; Wijetilaka D; Argent E; Cotterell E; Jacobson EE; McCarthy H; Sampaio H; Dalby-Payne J; Doyle K; Bhattacharya K; Lorentzos M; Slade R; Evans R; Pillai S; Mohammad S; Piper S; Sarkozy V; Stark K; Ging J; Sachdev R; Nunn K; Bye A, 2026, 'Connect, pause and reflect: Multidisciplinary clinicians’ shared challenges and sustaining strategies caring for children with Severe Neurological Impairment', European Journal of Paediatric Neurology, 60, pp. 15 - 23, http://dx.doi.org/10.1016/j.ejpn.2025.10.006
    Journal articles | 2025
    Djafar J; Nevin S; Smith N; Ardern-Holmes S; Bhattacharya K; Dale R; Ellaway C; Grattan S; Johnson A; Kandula T; Kariyawasam DS; Lewis K; Meagher CE; Mohammad S; Farrar MA, 2025, ''Fighting every day': Exploring caregiver quality of life and perspectives on healthcare services for children with dementia - A cross-sectional, mixed-methods study', Archives of Disease in Childhood, 110, pp. 566 - 572, http://dx.doi.org/10.1136/archdischild-2024-328011
    Journal articles | 2025
    Ha L; Nevin SM; Wakefield CE; Jacovou J; Mizrahi D; Signorelli C, 2025, 'Exploring childhood cancer survivor, parent, healthcare and community professionals’ experiences of, and priorities for, using digital health to engage in physical activity: a mixed methods study', Journal of Cancer Survivorship, 19, pp. 1403 - 1418, http://dx.doi.org/10.1007/s11764-024-01560-z
    Journal articles | 2025
    Sansom-Daly UM; McLoone JK; Fardell JE; Evans HE; McGill BC; Robertson EG; Signorelli C; Ellis S; Ha L; Hetherington K; Houweling RE; Nevin SM; Schilstra CE; Mitchell R; Haber M; Cohn RJ; Wakefield CE, 2025, 'Bridging the Gap: Embedding Psychosocial Oncology Research into Comprehensive Cancer Care for Children and Young People', Cancers, 17, http://dx.doi.org/10.3390/cancers17132123
    Journal articles | 2024
    Innes EA; Marne FAL; Macintosh R; Nevin SM; Briggs NE; Vivekanandarajah S; Webster RI; Sachdev RK; Bye AME, 2024, 'Neurodevelopmental outcomes in a cohort of Australian families with self-limited familial epilepsy of neonatal/infantile onset', Seizure, 115, pp. 1 - 13, http://dx.doi.org/10.1016/j.seizure.2023.12.013
    Journal articles | 2024
    Nevin SM; Le Marne FA; Beavis E; Macintosh R; Palmer EE; Sachdev R; Nunn K; Bye A; van Beek A; Wittekind C; Shalhoub C; Lau CYY; Elliot C; Rogers D; Wijetilaka D; Argent E; Cotterell E; Jacobson EE; McCarthy H; Sampaio H; Dalby-Payne J; Ging J; Doyle K; Bhattacharya K; Stark K; Lorentzos M; Slade R; Evans R; Pillai S; Mohammad S; Piper S; Sarkozy V, 2024, 'Psychosocial experiences of clinicians providing care for children with severe neurological impairment', Developmental Medicine and Child Neurology, 66, pp. 1622 - 1631, http://dx.doi.org/10.1111/dmcn.15987
    Journal articles | 2024
    Sandy JL; Betts G; Harper JL; Nevin SM; Deans R; Neville KA, 2024, 'Family planning and preimplantation testing: family experiences in congenital adrenal hyperplasia.', Front Endocrinol (Lausanne), 15, pp. 1482902, http://dx.doi.org/10.3389/fendo.2024.1482902
    Journal articles | 2024
    Schilstra CE; Sansom-Daly UM; Ellis SJ; Anazodo AC; Trahair TN; Lindsay T; Amiruddin A; O’Dwyer C; Maguire F; Nevin S; Battisti R; Fardell JE, 2024, 'Social Anxiety Symptoms in Adolescents and Young Adults Recently Diagnosed with Cancer', Journal of Adolescent and Young Adult Oncology, 13, pp. 674 - 682, http://dx.doi.org/10.1089/jayao.2023.0186
    Journal articles | 2023
    Nevin SM; McGill BC; Kelada L; Hilton G; Maack M; Elvidge KL; Farrar MA; Baynam G; Katz NT; Donovan L; Grattan S; Signorelli C; Bhattacharya K; Nunn K; Wakefield CE, 2023, 'The psychosocial impact of childhood dementia on children and their parents: a systematic review', Orphanet Journal of Rare Diseases, 18, http://dx.doi.org/10.1186/s13023-023-02859-3
    Journal articles | 2022
    Bye AME; Le Marne FA; Beavis E; Macintosh R; Nevin SM; Palmer EE; Sachdev R; Nunn K, 2022, 'Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 3 (of 3): Hope', Journal of Paediatrics and Child Health, 58, pp. 1726 - 1728, http://dx.doi.org/10.1111/jpc.16187
    Journal articles | 2022
    Nevin SM; Beavis E; Macintosh R; Palmer EE; Sachdev R; Le Marne FA; Bye AME; Nunn K, 2022, 'Hope in the uncertainties and certainty for parents of children with rare neurological disorders: Part 2 (of 3): Certainty', Journal of Paediatrics and Child Health, 58, pp. 1722 - 1725, http://dx.doi.org/10.1111/jpc.16202
    Journal articles | 2022
    Nevin SM; Wakefield CE; Barlow-Stewart K; McGill BC; Bye A; Palmer EE; Dale RC; Gill D; Kothur K; Boggs K; Le Marne F; Beavis E; Macintosh R; Sachdev R, 2022, 'Psychosocial impact of genetic testing on parents of children with developmental and epileptic encephalopathy', Developmental Medicine and Child Neurology, 64, pp. 95 - 104, http://dx.doi.org/10.1111/dmcn.14971
    Journal articles | 2022
    Nevin SM; Wakefield CE; Dadich A; LeMarne F; Macintosh R; Beavis E; Sachdev R; Bye A; Nunn K; Palmer EE, 2022, 'Hearing parents' voices: A priority-setting workshop to inform a suite of psychological resources for parents of children with rare genetic epilepsies', Pec Innovation, 1, http://dx.doi.org/10.1016/j.pecinn.2021.100014
    Journal articles | 2022
    Nevin SM; Wakefield CE; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer EE; Nunn K, 2022, 'Piloting positive psychology resources for caregivers of a child with a genetic developmental and epileptic encephalopathy', European Journal of Paediatric Neurology, 37, pp. 129 - 138, http://dx.doi.org/10.1016/j.ejpn.2022.01.022
    Journal articles | 2022
    Palmer EE; Sachdev R; Beavis E; Macintosh R; Le Marne FA; Nevin SM; Bye AME; Nunn K, 2022, 'Hope in the uncertainties and certainty for parents of children with rare neurological disorders. Part I (of 3): Uncertainty', Journal of Paediatrics and Child Health, 58, pp. 1718 - 1721, http://dx.doi.org/10.1111/jpc.16165
    Journal articles | 2022
    Robertson EG; Kelada L; Best S; Goranitis I; Grainger N; Le Marne F; Pierce K; Nevin SM; Macintosh R; Beavis E; Sachdev R; Bye A; Palmer EE, 2022, 'Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: A mixed-method pilot study protocol', BMJ Open, 12, pp. e063249, http://dx.doi.org/10.1136/bmjopen-2022-063249
    Journal articles | 2022
    Strnadová I; Nevin SM; Scully JL; Palmer EE, 2022, 'The opinions and experiences of people with intellectual disability regarding genetic testing and genetic medicine: A systematic review', Genetics in Medicine, 24, pp. 535 - 548, http://dx.doi.org/10.1016/j.gim.2021.11.013
    Journal articles | 2021
    McKeon G; Palmer EE; Macintosh R; Nevin SM; Wheatley L; Rosenbaum S, 2021, 'Feasibility of a mental health informed physical activity intervention for the carers of children with developmental and epileptic encephalopathy', Epilepsy and Behavior, 121, http://dx.doi.org/10.1016/j.yebeh.2021.108022
    Journal articles | 2020
    Gleeson M; Kentwell M; Meiser B; Do J; Nevin S; Taylor N; Barlow-Stewart K; Kirk J; James P; Scott CL; Williams R; Gamet K; Burke J; Murphy M; Antill YC; Pearn A; Pachter N; Ebzery C; Poplawski N; Friedlander M; Tucker KM, 2020, 'The development and evaluation of a nationwide training program for oncology health professionals in the provision of genetic testing for ovarian cancer patients', Gynecologic Oncology, 158, pp. 431 - 439, http://dx.doi.org/10.1016/j.ygyno.2020.05.001
    Journal articles | 2020
    Nevin SM; McLoone J; Wakefield CE; Kennedy SE; McCarthy HJ, 2020, 'Genetic Testing in the Pediatric Nephrology Clinic: Understanding Families' Experiences', JOURNAL OF PEDIATRIC GENETICS, 11, pp. 117 - 125, http://dx.doi.org/10.1055/s-0040-1721439
    Journal articles | 2020
    Nevin SM; Wakefield CE; Schilstra CE; McGill BC; Bye A; Palmer EE; Gok C, 2020, 'The information needs of parents of children with early-onset epilepsy: A systematic review', Epilepsy and Behavior, 112, pp. 107382, http://dx.doi.org/10.1016/j.yebeh.2020.107382
    Journal articles | 2017
    Nevin SM; Vartanian LR, 2017, 'The stigma of clean dieting and orthorexia nervosa', Journal of Eating Disorders, 5, http://dx.doi.org/10.1186/s40337-017-0168-9
    Journal articles | 1969
    NEVIN S, 1969, 'JAKOB - CREUTZFELDT DISEASE', BRITISH MEDICAL JOURNAL, 1, pp. 847 - &, http://dx.doi.org/10.1136/bmj.1.5647.847
    Journal articles | 1966
    NEVIN S, 1966, 'SALARIES AND CARDIOGRAPHERS', BRITISH MEDICAL JOURNAL, 2, pp. 53 - &, http://dx.doi.org/10.1136/bmj.2.5504.53-e
  • Conference Papers | 2024
    Nevin S; Kelada L; Wakefield C; Hilton G; Maack M; Djafar J; Elvidge K; Farrar M, 2024, 'Childhood Dementia Insight: A mixed-methods study investigating the psychosocial, quality of life, and psychological impacts of childhood dementia on families', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, GERMANY, Berlin, pp. 1217 - 1217, presented at 57th Conference of the European-Society-of-Human-Genetics (ESHG), GERMANY, Berlin, 01 June 2024 - 04 June 2024
    Conference Papers | 2024
    Nevin S; Le Marne F; Beavins E; Macintosh R; Pamer E; Sachdev R; Nunn K; Bye A, 2024, 'Capturing interdisciplinary clinicians' psychosocial and psychological experiences providing care for children with severe neurogenetic conditions', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, GERMANY, Berlin, pp. 1811 - 1811, presented at 57th Conference of the European-Society-of-Human-Genetics (ESHG), GERMANY, Berlin, 01 June 2024 - 04 June 2024
    Conference Papers | 2024
    Sandy JL; Betts G; Harper JL; Nevin SM; Deans R; Neville KA, 2024, 'Family planning and preimplantation testing: family experiences in congenital adrenal hyperplasia', in Frontiers in Endocrinology, http://dx.doi.org/10.3389/fendo.2024.1482902
    Preprints | 2023
    Nevin S; McGill B; Kelada L; Hilton G; Donnell M; Elvidge K; Farrar M; Baynam G; Katz N; Donovan L; Grattan S; Signorelli C; Bhattacharya K; Nunn K; Wakefield C, 2023, ‘The psychosocial impact of childhood dementia on children and their parents: A systematic review’, http://dx.doi.org/10.21203/rs.3.rs-2282768/v1
    Conference Papers | 2022
    Robertson E; Kelada L; Best S; Goranitis I; Pierce K; Grainger N; Nevin S; Macintosh R; Le Marne F; Beavins E; Sachdev R; Bye A; Palmer E, 2022, 'Too many questions, too little information: Supporting families who have a child with severe genetic epilepsy', in EUROPEAN JOURNAL OF HUMAN GENETICS, SPRINGERNATURE, AUSTRIA, Vienna, pp. 325 - 326, presented at 55th European-Society-of-Human-Genetics (ESHG) Conference, AUSTRIA, Vienna, 11 June 2022 - 14 June 2022
    Conference Presentations | 2021
    Nevin S; Wakefield C; Le Marne F; Beavis E; Macintosh R; Sachdev R; Bye A; Palmer E; Nunn K, 2021, 'Evaluating positive psychology resources among caregivers of a child with a genetic epilepsy', presented at The Australian and New Zealand Child Neurology Society (ANZCNZ) 9th Annual Scientific Meeting, Held virtually, 13 September 2021 - 15 September 2021
    Conference Papers | 2020
    Meiser B; Gleeson M; Kentwell M; Do J; Nevin S; Taylor N; Barlow-Stewart K; Kirk J; James P; Scott CL; Williams R; Gamet K; Burke J; Murphy M; Antill Y; Pearn A; Pachter N; Ebzery C; Poplawski N; Friedlander M; Tucker K, 2020, 'The development and evaluation of a nationwide training program for oncology health professionals in the provision of genetic testing for ovarian cancer patients', in ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, WILEY, pp. 62 - 62
    Conference Posters | 2019
    Macintosh R; Nevin S; Le Marne F; McGill B; Sachdev R; Wakefield C; Bye A; Palmer E, 2019, 'Co-development of education and support resources for families with severe early-onset genetic epilepsy', Welcome Genome Campus, UK, presented at World Congress of Genetic Counselling, Welcome Genome Campus, UK, 02 October 2019 - 04 October 2019
    Conference Abstracts | 2019
    Nevin S; Claire W; Kennedy S; McCarthy H, 2019, 'MON-311 The Psychosocial Implications for Patients and their Families of Introducing Genomic Testing into Mainstream Paediatric Nephrology', in Kidney International Reports, Elsevier, Vol. 4, pp. S426 - S427, presented at Kidney International Reports, http://dx.doi.org/10.1016/j.ekir.2019.05.1122
    Conference Papers | 2018
    Antill Y; Barlow-Stewart K; Friedlander M; Meiser B; Do J; Nevin S; Gleeson M; Kentwell M; Tucker K; Taylor N; Kirk J, 2018, 'Changing a nation: The development and evaluation of a training program for oncology health professionals in the provision of genetic testing for ovarian cancer patients.', in INTERNATIONAL JOURNAL OF GYNECOLOGICAL CANCER, BMJ PUBLISHING GROUP, pp. 202 - 203, https://www.webofscience.com/api/gateway?GWVersion=2&SrcApp=PARTNER_APP&SrcAuth=LinksAMR&KeyUT=WOS:000471153100137&DestLinkType=FullRecord&DestApp=ALL_WOS&UsrCustomerID=891bb5ab6ba270e68a29b250adbe88d1

2019 - 2023, University of New South Wales International Research Scholarship (TFS). 

2019 - 2022, Luminesce Alliance - Innovation for Children's Health PhD Scholarship, funded by Paediatrio and the Office for Health and Medical Research, NSW Government.

2021 - 2022, Recipient of the Sydney Children’s Hospital Network Early Career Researcher Award. 

2021, Recipient of the UNSW School of Women’s and Children’s Health, Excellence in Higher Degree Research Award.